Tag: metabolic disorder

I want to talk about what happens to a marriage when life rears its ugly head, like when you receive life-altering news about your child’s health. It gets exposed. Continue reading Exposed

“A proud man is always looking down on things and people; and, of course, as long as you are looking down, you cannot see something that is above you.” C.S. Lewis – Mere Christianity. This probably says more about me over the past decade than I care to admit publicly. It manifests its self in control. … Continue reading These Genes Fit Just Right: an introduction to relying on others

This post is a follow up to my two posts, Re-Evaluate Everything and Talking about an Early Exit. Many of you have asked to hear more details about the journey that brought us here. Many have also asked to hear Sarah’s perspective through it all. Well, she delivered. In a powerful way. To me, this is … Continue reading Broken Expectations

This is the sequel to Measuring Life and Using More Complex Sentences. I broke this piece up into two parts for, well, the sake of digestibility I suppose. If you have not read Part 1, you should do so first. You can find it here.  I left you with these questions: Did you know the number … Continue reading Measuring Life and Using More Complex Sentences (Part 2)

How Will You Measure Your Life? So I told my boss about Willa’s condition. She was going to find out eventually. I tried to put myself in her shoes in receiving news like this. And therefore I didn’t expect much in a response. It has to be one of the toughest tasks as a leader … Continue reading Measuring Life and Using More Complex Sentences (Part 1)

The Follow-Up Visit So you receive news that your daughter has a rare disease. The first response is, I don’t believe you. Shock. Denial. The second is, what can I do right now to fix this? Nothing. Next you learn that it is going to be a few months before you can even get in … Continue reading Talking about an Early Exit