Re-Evaluate Everything

30 thoughts on “Re-Evaluate Everything”

  1. Mark, this was beautifully written. My heart and prayers go out to you, your family, and especially Willa. I know no words will ever bring true description to what you and your family are feeling and attempting to process but take comfort in knowing that it’s all in God’s plan. It is amazing how much our purpose in life changes once we have children. How they experience and adapt to life changes our world (our perspective) daily. The Wilson family I grew up with and loved was full of fighters and I know Willa will be the same!

    Thank you for challenging me this morning. Your words were the wake up call I so desparately needed and have been subconsciously searching for.

    I truly send my best to you and your family and will be keeping you all in my thoughts and prayers. Thank you for being that “open book” this morning. It (you) has made a difference.

    Like

    1. Carter – I cannot adequately express my gratitude for your kind words. They are immensely encouraging. Thank you. I hope you are well, friend.

      Like

  2. My thoughts and prayers are with you Mark and Sarah as well as your family. Thank you for making me open my eyes and heart as no one has done in a long time. Your heart felt blog is such an inspiration to me and I hope more can read and share with you and Sarah as you travel this road called life. I know God will bless and comfort your family as only He can. Your passion for living a life for God is very evident.

    Like

  3. Mark, Thank you for opening your heart in these words. Coach Smith and I certainly prefer for all “our players” to stay close to home so we can keep up with their lives easier, but we know that some do not. For those that do not, we often feel badly that we do not know enough about their lives to be able to remain in an encourager role in their lives. We certainly feel this way about you and your current situation. Please know that we are with you in thought and in prayer as you walk this journey. Regina and Ernie Smith

    Like

    1. Thank you for responding, Regina. I cannot stress to you how great it is to hear from folks like you and coach Smith. I hope you are so well.

      Like

  4. Mark, Thank you. I am so blessed and proud to call you son-in-love. I know you and Sarah are the perfect parents for my sweet Willa Jane.
    I love you dearly. Jane

    Like

    1. Jane, Mark, Sarah and Family,
      Thank you Mark for sharing your heart with us. I am praying for Willa and all of you daily. Love to all, Monty

      Like

  5. Mark, you, Sarah, Rowe and Willa are in our deep deep prayers. I have No idea what you are going through but my heart breaks for all of you..and god also know that the Lord does know. May he comfort your heart. Love you guys and hope to see you soon.

    Like

    1. Wow, I have prayed and wondered how Willa was doing for some time. I live all of my nieces and nephews but that little girl had a special place in my heart from day one I met her. She has a very loving heart and personality. Is it funny how God knows what we need before we know ourselves. God knew that Willa was a special child and need to be given to special parents who could live and care for her. Again I say WOW… I know what every the future holds for all of you… God has got this..and believe it to and all will work out for you all and him… Though all that we are and do. Do it to HIS glory. I pray for you all…and give my sweet niece a kiss from her Aunt Renee😘

      Like

  6. Thanks for that Mark. My prayers are for Willa, You, Sarah and Rowe. So glad God placed you all in my life. May God continue to bless you all

    Like

  7. Beautifully written. Thinking of you all as you navigate this journey. Willa is so lucky to have you and Sarah as her parents.

    Like

  8. Mark, you have shared with us your heart in every word, so beautifully written. Lifting you, Sarah, Rowe, and your precious Willa in daily guidance and sweet prayer. Bubba and I have a grandson with Autism, so we truly see the daily struggles that parents and siblings have with precious special needs children, Love to you all!

    Like

  9. Hi Mark, my name is Kari. My son was diagnosed with ADSL two years ago. Your words are beautifully real. Thank you for putting into words, something so many of us have experienced. I have reached out to your wife on Facebook and hope to connect with your family soon.

    Like

    1. Kari – Thank you for reaching out. Sarah has enjoyed chatting with you and learning from you over the past couple of days. I am grateful for the connection. I hope we can stay in touch regularly. If there’s anything we can do to support you, please let us know. We all need it.

      Like

  10. Mark,

    I am the grandfather of Kari Browns son with the same rare disorder. And I thank you profusely for helping raise awareness about ADSL, and doing it in such a way that it will help many others with other challenges they may be facing at the same time it helps you and Sarah, and Rowe and Willa. I do urge you and your wife to respond to my daughter Kari as she and her husband have been dealing with this for some time and they’ve discovered a lot that can be of help to the family of one with ADSL. We send our love and prayers from our family to yours and I’m sure you will face this challenge with love and courage. We wish your family all the best and most of all love and happiness.

    Like

    1. Darrell – Thank you for reaching out. My wife, Sarah, and Kari have connected, and I am so glad for it. It has been so helpful already. I mentioned this to Kari, but if there is anything we can do to support your family, please let us know.

      Like

  11. Mark and Sarah, I admire your approach on Willa’s diagnosis. You took the bull by the horn and found a diagnosis. That in itself is hard for many parents. She is very lucky to have you both as parents. In my opinion, the only reevaluation is learning a new kind of “normal”. Rejoice in your new acceptance, humbleness, and simplicity as these will carry you far on your journey. ∼ MamaBecky

    Liked by 1 person

  12. Hi Mark,
    Kari shared your wonderfully written piece & I felt a lot of emotions reading it. I am the mother of a 13yr old with ADSL. We live in Ireland. I remember those early days so clearly. 13 years on & we still struggle but focus on making the best life possible for our boy… he’s brings so much joy. Sending you & your family best wishes & strength. Avril

    Like

  13. Mark, my best thoughts and prayer are with you and Sarah as you journey through life with your precious family. Knowing Sarah, and Jan e and Jack- and after reading your words, I realize Willa will be in the best of care. May the Lord hold all close in his arms.

    Like

  14. Beautifully written! I’ve only know your wife as a little girl but have kept up with you knowing you needed prayer and prayer you will get!!?! Read ps 91 daily ALOUD and make it personal! I’m doing that for you as well!!! You are a strong young man and I admire your openess! Your family is precious!!!

    Like

  15. Oh no Mark & Sarah,
    I had no info on this & just read your words so marvelously & lovingly written !
    I pray God will bless your family with added strength to give positive energy & encouragement for Willa’s life 😘

    Like

  16. My goodness, wow…I’m just now reading this first blog , after reading Sarah’s addition to the blog this morning, and thinking I wasn’t comprehending what I had read. I am truly touched by yours and Sarah’s willingness to share your family’s journey through this. My heart aches for you, for my friend, sweet Sarah , for that rambunctious, Rowe and for that precious bundle of plump cherub cheeks and mile wide smiles, Willa. Through the tears, a pile of used Kleenex, a cup of coffee, now turned cold, I am praying for you both, the kids, ya’lls parents, the doctors, nurses etc. If I read it correctly, did I see that baby #3 is bebopping and growing along ? Congratulations you two, and prayers for the health of both Momma Sarah and Wee#3. You’re a courageous, brave, strong, caring, loving, kind and smart Christian man…you’re a provider and the protector/keeper of your family as a husband and father; your strengh, honesty, love, support, caring heart, kind soul, integrity, genuine sincerity and bravery to share with us your lives so openly in a blog while dealing with these fears, unknowns, what ifs, etc with the news of Willa’s diagnosis is admirable and commendable. God is moving through you, through the blog, your marriage , your journey and touching all of our hearts , our souls with lessons of wisdom, love, education, sadness, as well as the laughter through the tears….it truly shows,. I’m grabbing pen and paper to do your suggested exercises. We are all here to support y’all in whatever way you may need. Many blessings to you and your family. Seriously, if there is anything you or Sarah need please do not hesitate to contact me and ask me. I am way the heck up here in Kentucky however, I have more free time than ever before , no mortgage and that enables me to offer my help. From prayers ( which I will be doing already) to….whatever A to Z just ask, please!
    Take care, God Bless and BIG LOVE to yall! -Roger Tison

    Like

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s